Mothers of children with thechronic diseasc thalassemia major: astudy oftheir relationship with the thalassemic child
Keywords:
Thalassemic, Chronic disease, Relation ofmothers and thalassemic childrenAbstract
This study is about thalassemic children's mothers. We have studies three cases, searching to understand the physichogycal dynamics in the relation ofrnothers and thalassemic children, and its influence on the development of the disease treatment. ln this qualitative research, results analysis was bascd on the phenomenologycal method, by using rnother's reports, where they tell us about theirchildren's life history since their birth. We have concluded that thalassemic children's mothers have a conflict in relation to their children's disease. This conflict is caracterized by a negative feeling, and the rion acceptance ofthe children's disease, consequently, resulting into inadequate performances in relation to the children and their treatment.
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References
AMARILIAN, M.L.T.M. Diagnóstico e classifi cação das excepcionalidades. ln: RAPPAPORT, C.R. (Coord.) A psicologia do excepcional. São Paulo: EPU, 1986, p. 11-37.
OMS. As necessidades dos doentes com hemoglobi nopatias: Recomendações para o seu acompa nhamento e apoio psicológico e social, 1989, p. 27-31. (Grupo de trabalho da OMS sobre os aspectos psicológicos da talassemia e drapanoci tose).
ASSOCIAÇÃO BRASILEIRA DENORMAS TÉCNICAS. NBR 6023: referências bibliográficas. Rio de Janeiro: Forum Nacional de Normati zação, out. 1989.
BERA flS, S. Noncompliance with iron chelation therapy in patients v.ith betathaiassemia. Journal o/Al'cho.1·01110/ic Research, v. 3, n.6, p. 739-45, 1989.
BOEMER, M.R. Fundamentação metodológica. ln: O fenômeno morte: o pensar, o conl'iver e o educar. Tese de livre-docência. Escola de Enfer magem, USP, Ribeirão Preto, 1989.
FRANÇA, C. Psicologia Fenomeno/ágica • uma das maneirm de se .fil::er. Campinas: UNICAMP, 1989.
GIORDANO, V. Psychosocial impacts on a thalas semic patient's life. Ann Ny Acad Sei. v. 445, p. 324-26, 1985.
GIORGI, A. Sketch of a psychological pheno menological method. ln: GIORGI, A. (Org.). Phenomenolog_1· and psychological research. Pittsburg: Duqucsne University, 1985, p. 9-22.
KRAEME, S. Ili children have family crises too. Practioner, v. 226, 11. 1366, p. 720-723, 1982.
MASSAGLIA, P.. CARPIGNANO, M. Psychology of the thalassemia patient and his family.(Texto Policopiado).
MUCCHIELLI, A. Les mé1hodes qualitatives. Paris: PUF, 1991.
NASH, K.B.A. Psychosocial perspective: growing up with thalassemia a chronic disorder. Ann. NY Acad Sei, v. 612, p. 442-450, I 990.
SHERMAN, M. et ali. Thalassemic children's un derstanding of illness: A study of cognitive and cmotional factors. Ann. NY Acad. Sei., v. 445, p. 327-336, 1985.
TSIANTS J. Family reactions and relationships in thalassemia. Ann. NY Acad. Sei., v. 612, p. 451- 461, 1990.
TSIANTS J. et ai. Family reactions and their man agement in a parents group with beta-thalas semic. Archives of Disease in Childhood, v. 57, p, 860-863, 1982.
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Copyright (c) 1995 Marielis Prates Fachine , Mauro Martins Amatuzzi

This work is licensed under a Creative Commons Attribution 4.0 International License.







